Report on the proposal for a regulation of the European Parliament and of the Council on the European Health Data Space

Amendement n°60 (europe)

Données personnelles

Santé

Handicap et inclusivité

Déposé le Dimanche 14 avril 2024 à 22h00

Déposé par : M. Bernd LANGE, M. Udo BULLMANN, Mme Lara WOLTERS, Mme Kathleen VAN BREMPT, Mme Margrete AUKEN, Mme Sophia IN 'T VELD, M. Georg MAYER, Mme Anna CAVAZZINI, Mme Catherine GRISET, M. Pascal CANFIN, M. Bas EICKHOUT, Mme Ska KELLER, M. François ALFONSI, M. Juan Fernando LÓPEZ AGUILAR, Mme Marisa MATIAS, M. Jens GEIER, Mme Petra KAMMEREVERT, Mme Cornelia ERNST, Mme Karima DELLI, Mme Birgit SIPPEL, Mme Sylvie GUILLAUME, Mme Marie TOUSSAINT, M. Daniel FREUND, M. Gilles LEBRETON, M. Jean-François JALKH, Mme Dominique BILDE, M. Martin SONNEBORN, Mme Rosa D'AMATO, Mme Maria NOICHL, M. Joachim SCHUSTER, M. Gerolf ANNEMANS, M. Harald VILIMSKY, M. Paul TANG, Mme Agnes JONGERIUS, Mme Clara AGUILERA, M. Markus BUCHHEIT, M. Jordan BARDELLA, M. Gunnar BECK, Mme Annika BRUNA, M. Jakop G. DALUNDE, Mme Alexandra GEESE, M. Tiemo WÖLKEN, M. Tom VANDENDRIESSCHE, Mme France JAMET, M. Thomas WAITZ, Mme Tilly METZ, Mme Alice KUHNKE, M. Pär HOLMGREN, M. Patrick BREYER, Mme Katarina BARLEY, Mme Gabriele BISCHOFF, M. Damian BOESELAGER, Mme Delara BURKHARDT, M. Rasmus ANDRESEN, M. Sergey LAGODINSKY, M. Erik MARQUARDT, Mme Jutta PAULUS, Mme Saskia BRICMONT, M. Filip DE MAN, M. Nicolaus FEST, M. Maximilian KRAH, M. Joachim KUHS, Mme Sylvia LIMMER, M. Guido REIL, M. Bernhard ZIMNIOK, Mme Marina KALJURAND, M. Mounir SATOURI, M. David CORMAND, Mme Caroline ROOSE, M. Jarosław DUDA-LATOSZEWSKI, M. Benoît BITEAU, Mme Beata KEMPA, Mme Gwendoline DELBOS-CORFIELD, M. Mikuláš PEKSA, M. Marcel KOLAJA, Mme Markéta GREGOROVÁ, M. Ivan DAVID, Mme Karen MELCHIOR, M. Damien CARÊME, M. Thierry MARIANI, Mme Virginie JORON, M. Jean-Paul GARRAUD, M. Francisco GUERREIRO, M. Cristian TERHEŞ, Mme Sarah WIENER, Mme Aurélia BEIGNEUX, M. Philippe OLIVIER, M. André ROUGÉ, Mme Mathilde ANDROUËT, M. Pierre LARROUTUROU, M. Konstantinos ARVANITIS, M. Robert ROOS, Mme Clare DALY, Mme Vera TAX, M. Eugen JURZYCA, Mme Tineke STRIK, M. Rob ROOKEN, M. Mohammed CHAHIM, Mme Francesca DONATO, M. Jorge BUXADÉ VILLALBA, M. Hermann TERTSCH, Mme Kim VAN SPARRENTAK, M. Ivan Vilibor SINČIĆ, Mme Mazaly AGUILAR, M. Roman HAIDER, M. Emmanouil FRAGKOS, Mme Alviina ALAMETSÄ, Mme Margarita DE LA PISA CARRIÓN, M. Claude GRUFFAT, M. Jean-Lin LACAPELLE, Mme Manuela RIPA, Mme Sara MATTHIEU, M. Cyrus ENGERER, M. Karsten LUCKE, M. Malte GALLÉE, M. Matjaž NEMEC, Mme Marie DAUCHY, M. Eric MINARDI, Mme Patricia CHAGNON, M. Matthias ECKE, Mme Theresa BIELOWSKI, M. Thomas RUDNER, Mme Lydie MASSARD,

Recital 62 a (new)

Version initale

Amendement

(62a) Improving digital health literacy for both natural persons and their health professionals is key in order to achieve trust, safety and appropriate use of health data and thus to achieve successful implementation of this Regulation. Improving digital health literacy is fundamental in order to empower natural persons to have true control over their health data and actively manage their health and care, and understand the implications of the management of such data for both primary and secondary use. Member States, including regional and local authorities, should therefore support digital health literacy and public awareness, while ensuring that the implementation of this Regulation contributes to reducing inequalities and does not discriminate against people lacking digital skills. Particular attention should be given to persons with disabilities and vulnerable groups including migrants and the elderly. Health professionals and IT operators should have sufficient training in working with new digital infrastructures to ensure cybersecurity and ethical management of health data.